Why do I want to run 12 Marathons?

 

Some time ago I joined a group called Irun4Michael. They buddy runners up with disabled children who cannot run and you dedicate your runs to them. My buddy was Evan. A gorgeous little boy with an incredibly friendly family who welcomed me into their lives (despite living miles away) and I felt part of their little family straight away. Evan has Angelman Syndrome.

What is Angelman Syndrome?  
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.

I got to meet them at a run where they supported me and became my cheering squad in the rain and freezing cold at a 10 mile race in November 2016. I cried when I met them, they brought me flowers too. They are amazing and they do an amazing job for Evan. Evan is pushchair bound, so all of my miles are dedicated to him.

 FB IMG 1478449813937


I decided that I wanted to do something for Evan more than just runs the miles and send him photos. I wanted to do something big. Hopefully I can
raise some money for ASSERT (The charity that support the families of those with Angelman Syndrome) and so they can use the money to fund more research into Angelman syndrome. I also would like more people to become aware of the condition.

I was due to run a marathon on the 1st January but due to a severe sinus infection I didn’t run for 5 weeks. This left me behind schedule so I have had to add another run in later in the year. Here is a list of my marathon and ultra marathon races for 2017:

Races

 

I will be blogging about my races on my page and also have a facebook page where you keep in touch with any training or updates. https://www.facebook.com/12marathonshelen/

If anyone would like to donate to my justgiving page, the link is www.justgiving.com/12marathonshelen.